Friday, July 11, 2008

Need Your Help

The last week in October is National Epidermolysis Bullosa Awareness Week. I really want to do something big this year to help raise the awareness of this terrible disease. Those of you who know me know that I am having a much harder time now than I have in the past. Even with as bad as my skin is now, it is nothing compared to some other children that are dying as you read.

So - I need your help, support and ideas - PLEASE comment on this post any ideas that you might have that I can do or organize or help with something that is already going on. My ultimate goal is to educate as many people as possible to help raise awareness and raise some money in the process for research.

ALL IDEAS ARE WELCOME!!

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